References

Anderson ES, Lennox A, Petersen S. ‘Learning from lives’: a model for health and social care education in the community context. Med Educ. 2003; 37:59-68

Anderson ES, Ford J, Thorpe LN. Learning to listen: improving students communication with disabled people. Med Teach. 2011; 32:1-9 https://doi.org/10.3109/0142159x.2010.498491

Anderson ES, Ford J., Thorpe L. Perspectives on patients and carers in leading teaching roles in interprofessional education. J Interprof Care. 2019; 33:(2)216-225 https://doi.org/10.1080/13561820.2018.1531834

Barnes D, Carpenter J, Dickinson C. The outcomes of partnerships with mental health service users in interprofessional education: a case study. Health Soc Care Community. 2006; 14:(5)426-435 https://doi.org/10.1111/j.1365-2524.2006.00661.x

Basset T, Campbell P, Anderson J. Service user/survivor involvement in mental health training and education: Overcoming the barriers. Soc Work Educ. 2006; 25:(4)393-402 https://doi.org/10.1080/02615470600593675

Bennett-Weston A, Gay S, Anderson ES. A theoretical systematic review of patient involvement in health and social care education. Adv Health Sci Educ. 2022; 1-26 https://doi.org/10.1007/s10459-022-10137-3

Beresford P, Croft S. Citizen involvement: a practical guide for change.New York: Macmillan International Higher Education; 2016

Carr EC, Worswick L, Wilcock PM, Campion-Smith C, Hettinga D. Improving services for back pain: putting the patient at the centre of interprofessional education. Qual Primary Care. 2012; 20:(5)345-353

Cooper H, Spencer-Dawe E. Involving service users in interprofessional education narrowing the gap between theory and practice. J Interprof Care. 2006; 20:(6)603-617 https://doi.org/10.1080/13561820601029767

The NHS plan: a plan for investment, a plan for reform.London: The Stationery Office; 2000

Shifting the balance of power within the NHS.London: The Stationery Office; 2001

Creating a patient led NHS: delivering the NHS improvement plan.London: The Stationery Office; 2005

Putting people first: a shared vision and commitment to the transformation of adult social care.London: The Stationery Office; 2007

Putting people first: working together with user-led organisations.London: The Stationery Office; 2009

Integration and innovation: working together to improve health and social care for all.London: The Stationery Office; 2021

Downe S, McKeown M, Johnson E The UCLan community engagement and service user support (Comensus) project: valuing authenticity, making space for emergence. Health Expect. 2007; 10:(4)392-406 https://doi.org/10.1111/j.1369-7625.2007.00463.x

Francis R. Report of the Mid Staffordshire NHS Foundation Trust public inquiry.London: The Stationery Office; 2013

Patient and public involvement in undergraduate medical education.London: General Medical Council; 2009

Living and learning together: conference report.London: General Social Care Council; 2004

Gordon M, Gupta S, Thornton D, Reid M, Mallen E, Melling A. Patient/service user involvement in medical education: a best evidence medical education. Med Teach. 2020; 42:(1)4-16 https://doi.org/10.1080/0142159X.2019.1652731

Happell B, Roper C. Promoting genuine consumer participation in mental health education: a consumer academic role. Nurse Educ Today. 2009; 29:(6)575-579 https://doi.org/10.1016/j.nedt.2008.01.004

Primer on public involvement.Toronto: Health Council of Canada; 2006

To err is human: building a safer health system.Washington: National Academy Press; 2000

INVOLVE. Being inclusive in public involvement (PI) in health research: things to think about: for researchers and practitioners. 2019. https://www.invo.org.uk/wp-content/uploads/2019/02/Being-Inclusive-HealthResearch.pdf (accessed 9 January 2023)

Khalili H. Online interprofessional education during and post the COVID-19 pandemic: a commentary. J Interprof Care. 2020; 34:(5)687-690 https://doi.org/10.1080/13561820.2020.1792424

Kline CC, Riganti P, Moller-Hansen A, Godolphin W, Towle A. Patients benefit from mentoring students in an interprofessional health mentors program: a contextual-developmental analysis. Med Teach. 2022; 1-7 https://doi.org/10.1080/0142159X.2021.2020737

Margolis LH, Fahje Steber K, Rosenberg A, Palmer A, Rounds K, Wells M. Partnering with parents in interprofessional leadership graduate education to promote family-professional partnerships. J Interprof Care. 2017; 31:(4)497-504 https://doi.org/10.1080/13561820.2017.1296418

Standards of proficiency for Midwives.London: Nursing and Midwifery Council; 2019

Ockenden D. Findings conclusions and essential actions from the independent review of maternity services at Shrewsbury Telford NHS Trust.London: The Stationary Office; 2022

Price JE, Mendizabal-Espinosa RM, Podsiadly E, Marshall-Lucette S, Marshall JE. Perinatal/neonatal palliative care: effecting improved knowledge and ultiprofessional practice of midwifery and children's nursing students through an inter-professional education initiative. Nurse Educ Pract. 2019; 40:2-9 https://doi.org/10.1016/j.nepr.2019.08.005

Renfrew MJ, McFadden A, Bastos MH Midwifery and quality care: findings from a new evidence informed framework for maternal and newborn care. Lancet. 2014; 384:1129-1145

Regan de Bere S, Nunn S. Towards a pedagogy for patient and public involvement in medical education. Med Educ. 2016; 50:(1)79-92 https://doi.org/10.1111/medu.12880

Rhodes CA, Nyawata ID. Service user and carer involvement in student nurse selection: key stakeholder perspectives. Nurse Educ Today. 2011; 31:(5)439-443 https://doi.org/10.1016/j.nedt.2010.10.005

Simons L, Tee S, Lathlean J, Burgess A, Herbert L, Gibson C. A socially inclusive approach to user participation in higher education. J Adv Nurs. 2007; 58:(3)246-255 https://doi.org/10.1111/j.1365-2648.2007.04216.x

Spencer J. Some activity but still not much action on patient and public engagement. Med Educ. 2016; 50:(1)5-7

Spencer J, Godolphin W, Carpenko N, Towle A. Can patients be teachers? Involving patients and service users in healthcare professionals' education.London: The Health Foundation; 2011

Steven K, Angus A, Breckenridge J, Davey P, Tully V, Muir F. Identifying key areas for active interprofessional learning partnerships: a facilitated dialogue. J Interprof Care. 2016; 30:(6)826-828 https://doi.org/10.1080/13561820.2016.1218829

Towle A, Godolphin W. Meeting of experts: the emerging roles of non-professionals in the education of health professionals. Teach Higher Educ. 2011; 16:(5)495-504 https://doi.org/10.1080/13562517.2011.570442

Towle A, Bainbridge L, Godolphin W, Katz A, Kline C, Lown B Active patient involvement in the education of health professionals. Med Educ. 2010; 44:(1)64-74 https://doi.org/10.1111/j.1365-2923.2009.03530.x

Towle A, Farrell C, Gaines ME The patient's voice in health and social care professional education: the Vancouver statement. Int J Health Gov. 2016; 21:(1)18-25 https://doi.org/10.1108/IJHG-01-2016-0003

Turner P, Sheldon F, Coles C Listening to and learning from the family carer's story: an innovative approach in interprofessional education. J Interprof Care. 2000; 14:(4)387-395 https://doi.org/10.1080/13561820020003937

University of Leicester. Patient and carer group. 2023. https://le.ac.uk/cls/study/patient-carer-group (accessed 9 January 2023)

Unwin P, Rooney J. The ‘nuts and bolts’ of including service users and carers in the recruitment of health and social work students in an English university – an interdisciplinary critique. Health Expect. 2020; 23:(6)1523-1532 https://doi.org/10.1111/hex.13137

Vijn TW, Wollersheim H, Faber MJ, Fluit CRMG, Kremer JAM. Building a patient-centered and interprofessional training program with patients, students and care professionals: study protocol of a participatory design and evaluation study. BMC Health Services Res. 2018; 18:(1) https://doi.org/10.1186%2Fs12913-018-3200-0

Warren A, Hughes M, Fry J, Cescutti-Butler L. Involvement in midwifery education: experiences from a service user and carer partnership. Br J Midwifery. 2017; 25:(8)524-530 https://doi.org/10.12968/bjom.2017.25.8.524

Winn S, Lindqvist S. Purposeful involvement of experts by experience. Clin Teach. 2019; 16:(3)183-188 https://doi.org/10.1111/tct.13032

Service user and carer involvement in online interprofessional learning during the COVID-19 pandemic

02 February 2023
Volume 31 · Issue 2

Abstract

Patients, service users and carers are now expected to contribute to teaching health and social care students in all professions. This follows policy directives driven by a review of failings in NHS standards for patient involvement in all aspects of health and social care. Patient and carer contributions to interprofessional education hold fast to values for patient/carer-centred care. This article discusses the context to service user and carer involvement in health professions education, drawing on current evidence and with considerations for midwifery students. A case study of a well-established carer's session is presented, drawing on the input of a mother, which was continued online during the pandemic. It was ensured that this important learning was not lost when teaching became remote, relying on technology-enhanced learning methods. These adaptations depend on long-standing patient partnerships between faculty in higher education institutions and patients/carers who must feel safe and trust the teaching context where they contribute to student learning. Effective learning can be maintained in online environments to ensure the patient voice remains central to health professions training.

The service user's voice in professional healthcare education has moved from a passive to a more active person-centred role, where people with lived experiences engage in teaching as partners to share their views (Spencer et al, 2011). Learning together shapes professional attitudes for compassion and empathy, while seeking greater understanding of how to involve service users in all aspects of their care, including shared decision making (Anderson et al, 2011; Towle et al, 2016). Most curriculum developers, including in midwifery, fail to understand what it means to involve users and carers, with recent systematic and best evidence reviews revealing areas where progress is still needed (Towle et al, 2016; Gordon et al, 2020).

In this article, the term ‘service user/mother’ will be used to represent those who receive health and social care with a focus on mothers. The authors recognise the use of other terms, such as ‘patient’ and ‘client’ in other professions. The term ‘carer’ will be used to refer to unpaid carers who support people with complex needs, and this includes mothers who have long-term care of disabled children.

Register now to continue reading

Thank you for visiting British Journal of Midwifery and reading some of our peer-reviewed resources for midwives. To read more, please register today. You’ll enjoy the following great benefits:

What's included

  • Limited access to our clinical or professional articles

  • New content and clinical newsletter updates each month